bigbird 60,525 Posted June 23, 2020 Author Share Posted June 23, 2020 Positive for staph aureus. Hematology, Infections disease, and the pediatric team want to remove/replace ASAP. Surgery wants to wait and try to treat the infection and try and save the port. Our hematologist will win that battle. She's a pitbull when it comes to James. I'll update again later. Sincerely, thank y'all for letting me lean on y'all. I appreciate the post and PMs from my friends. Link to comment Share on other sites More sharing options...
CleCoTiger 1,957 Posted June 23, 2020 Share Posted June 23, 2020 Bird, my heart goes out to your son and of course you and his mom. Best hopes are with you all. Link to comment Share on other sites More sharing options...
im4aual 487 Posted June 23, 2020 Share Posted June 23, 2020 Got you and your family in my prayers Link to comment Share on other sites More sharing options...
aubiefifty 16,791 Posted June 23, 2020 Share Posted June 23, 2020 prayers for your family and your son especially bird. i would buy him a video game off amazon and have it sent to a safe addy for him if you allow it. i imagine that and books take up a lot of his time. i think madden has a new game coming out. you message me a "safe" addy and i will do it if it is out or as soon as it comes out. or a different game with your approval. let me know. no special treatment on here expected. i would just like to brighten the young mans day up. heck i would give up my auto rookie chris davis kick six card and that is one of my favs.............. Link to comment Share on other sites More sharing options...
ArgoEagle 1,788 Posted June 23, 2020 Share Posted June 23, 2020 Prayers for your whole family Bird 🙏🙏 Link to comment Share on other sites More sharing options...
AUApostle 7,651 Posted June 23, 2020 Share Posted June 23, 2020 Praying right now and proclaiming healing. Link to comment Share on other sites More sharing options...
JDUBB4AU 5,121 Posted June 23, 2020 Share Posted June 23, 2020 Prayers lifted . Can’t imagine . Link to comment Share on other sites More sharing options...
Maverick.AU 13,279 Posted June 23, 2020 Share Posted June 23, 2020 Praying for you and the family, my friend Link to comment Share on other sites More sharing options...
AuburnNTexas 7,147 Posted June 23, 2020 Share Posted June 23, 2020 Praying for you and your family. Link to comment Share on other sites More sharing options...
CameronCrazy 1,061 Posted June 23, 2020 Share Posted June 23, 2020 So sorry that you guys are going through this. Praying for you and your family! Link to comment Share on other sites More sharing options...
AUpreacherman22 3,885 Posted June 23, 2020 Share Posted June 23, 2020 Praying for you and your family! Link to comment Share on other sites More sharing options...
aubcali 433 Posted June 23, 2020 Share Posted June 23, 2020 Prayers for your family. Thanks for the update. Link to comment Share on other sites More sharing options...
Auburn2Eugene 2,317 Posted June 23, 2020 Share Posted June 23, 2020 I hope he gets better. I hate seeing anyone going through something like this... Link to comment Share on other sites More sharing options...
tigerbrotha12 2,362 Posted June 23, 2020 Share Posted June 23, 2020 You and your family are in my prayers, Bird! Link to comment Share on other sites More sharing options...
Maverick.AU 13,279 Posted June 23, 2020 Share Posted June 23, 2020 13 hours ago, bigbird said: Positive for staph aureus. Hematology, Infections disease, and the pediatric team want to remove/replace ASAP. Surgery wants to wait and try to treat the infection and try and save the port. Our hematologist will win that battle. She's a pitbull when it comes to James. I'll update again later. Sincerely, thank y'all for letting me lean on y'all. I appreciate the post and PMs from my friends. We’re always here for ya Bird! Great to hear that James has a great Hematologist. Having a doctor like that, that does anything and everything in their power for their patients wellbeing, is truly a blessing. Much love buddy! Link to comment Share on other sites More sharing options...
TigerCatcher 182 Posted June 23, 2020 Share Posted June 23, 2020 I was completely undone by that picture...gotta' ask what's the dog's name? He/she is doing some outstanding work there, probably deserves a raise in Scooby snacks. Praying over Little Bird and his caregivers in Powder Springs, GA. Link to comment Share on other sites More sharing options...
kingfish 73 Posted June 23, 2020 Share Posted June 23, 2020 It is so hard for a parent to have to deal with big medical issues with your children. It is hard on both. My prayers to the Father you wisdom, great medical treatment, peace, and comfort for all ... asking in the mighty name of Jesus. Link to comment Share on other sites More sharing options...
3rdgeneration 6,469 Posted June 23, 2020 Share Posted June 23, 2020 Prayers for James, Bird family! I hope he starts to feeling better soon! Are you sure he's yours? He's pretty darn handsome!!! Just kidding! 😉 Link to comment Share on other sites More sharing options...
Tigerbelle 5,299 Posted June 24, 2020 Share Posted June 24, 2020 Very sorry to hear that your son is back in the hospital again. Sending prayers.....for James, for you and the rest of your family, and for his medical team. Link to comment Share on other sites More sharing options...
augolf1716 21,140 Posted June 24, 2020 Share Posted June 24, 2020 17 hours ago, 3rdgeneration said: Prayers for James, Bird family! I hope he starts to feeling better soon! Are you sure he's yours? He's pretty darn handsome!!! Just kidding! 😉 Trust me he takes after his Mom Link to comment Share on other sites More sharing options...
wde21 344 Posted June 24, 2020 Share Posted June 24, 2020 Praying for your son @bigbird🙏 Link to comment Share on other sites More sharing options...
bigbird 60,525 Posted June 24, 2020 Author Share Posted June 24, 2020 59 minutes ago, augolf1716 said: Trust me he takes after his Mom Good looking, talented, and strong-willed...yep! Link to comment Share on other sites More sharing options...
aubiefifty 16,791 Posted June 24, 2020 Share Posted June 24, 2020 22 minutes ago, bigbird said: Good looking, talented, and strong-willed...yep! bird i bet he has you and your sig other confused. lol i mean he older than dirt................grins Link to comment Share on other sites More sharing options...
bigbird 60,525 Posted June 24, 2020 Author Share Posted June 24, 2020 Waiting till we get the initial culture final reading to make a determination on treatment vs surgery. We should have that by this afternoon. Surgery say that after reading the ultrasound he has pretty much exhausted his available neck/upper chest veins and that's why they don't want to do a replacement. He's had port catheters in his subclavian, internal and external jugular on both sides and all are showing signs of scarring. They are afraid of further damage to them. They told us we are treating him to frequently and using the port too much and might need to stop his prophylaxis treatments and only treat him for severe bleeds. Yes, the same necessary, permanent disability and possible death preventing treatments. That makes a whole lotta frickin sense, huh? To exacerbate things, since he was diagnosed with CRPS (complex regional pain syndrome) on our last admission, the docs don't want him to be on opioids so they are just giving him Tylenol and tramodol (which is like tic-tacs for him). He's still have pretty bad breakthrough pain but they told him he just needs to manage it better through deep breathing, guided imagery, or medication. He literally looked at Amanda after they left and said, "WTF". Since it's covid season, he can only have one parent and no visitors. I typically stay with him because I have medical background but couldn't this time so Amanda is with him and we're trying to tag team the docs and their decisions. So to recap, James is in bad pain Docs aren't managing pain at all No decision on treatment or surgery Veins show scar tissue and are worn out (at 14) Can't leave the room Only one parent and no visitors allowed But on the bright side... And I got to play 3 hours of uninterrupted Super Mario Bros with my daughter last night followed up by Wii sports resort where I dominated her in ping-pong...and was embarrassed in bowling.😁 Link to comment Share on other sites More sharing options...
Tigerbelle 5,299 Posted June 24, 2020 Share Posted June 24, 2020 Dang bird! Your son has been through the wringer! Sorry you didn't get all positive news. Upping the prayers for him. Link to comment Share on other sites More sharing options...
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